Many of you will know Sarah living in Combe Down, and who suffers from the rare MORQUIO Syndrome. The Chronicle has featured her predicament recently,  amongst other things her condition means she needs Enzyme Treatment, to help with major functions, like her lungs. She has been on Vimizim treatment in Bristol, and sometimes London, on a trial basis . when this finished The Drug Company extended the treatment to Sarah on compassionate grounds, but Sarah has to find expensive fares to receive her treatment. The future is still uncertain, and in the hands of NICE and Ministers.

One of her friends has set up a Crowd Funding Page, so that people can donate, do have  look here and donate if you can:

https://crowdfunding.justgiving.com/Fund-Vimizim